Health Understandng IPF—A Rare Lung Dsease (NAPS)—Imagneths: one day, you or someone you care about develops a persstent dry cough and shortness of breath. Doctors aren't sure what to makeoft. It could be a commonresp- found ways to safely contnue dong some of the hobbes he enjoys, such as golfng and gong on walks. They also dscussed FDA-approved medcnes obstructve pulmonary dsease (COPD) (prfendone). Wth the help of hs doctor, Mark ratory condton lke asthma, chronc that treat IPE, and he now takes Esbret or bronchts—ort could be a rare, r- Every case of IPF s dfferent, so t s reversble lung dsease called dopathc mportant that, upon dagnoss, people work wth ther doctors to develop an ndvdualzed plan based on ther spe- pulmonaryfbross (IPF). Mark’s Story As an avd golfer and runner, Mark cfc needs, goals and what s mportant consdered hmselfto ben relatvely good to them. For some people wth IPF, oxygen health, whch s why he was surprsed when he developed a dry cough that wouldnt go away and was hosptalzed wth a bad case of pneumona. Hs doctor Mark(left), who was dagnosed wth IPF n 2016, and hs wfe, Melnda (rght) wasthen that Mark learned he has IPE Mark was dagnosed quckly, but many others wth IPF do not have ths approxmately 100,000 Amercans, those was concerned andran addtonaltests; t experence. In one survey, more than half of people wth pulmonaryfbross reported at least a one-year delay between early symptomsand dagnoss. WhatIs IPF? IPF s a progressve dsease that causes scarrng of the lungs, makng breathng dffcult. Snce most people wth IPF are over the age of 50, they may dsmss ther symptoms as changes n health that come wth agng. But wth a medan survval tme from dagnoss of just 3-5 years, IPF s very serous. Because t s a rare dsease affectng dagnosed wth IPF often feel solated and don’t know whereto turn for help. “I was shocked when I was dagnosed. Hearng from my doctor that IPF s unpredctable and can progress very quckly was overwhelmng,’ Mark sad. “It was an extremely hard tme for me and my famly.” What Can Be Done Once Mark learned that the damage to the lungs caused by IPF cannot be reversed, he decded he wanted to act quckly and be proactve. Although there s no cure for IPE, there are ways to managethe condton. therapy, pulmonary rehabltaton and jonng a support group may also be recommended andhelpful. Mark hopes that sharng hs story wll rase awareness of IPF symptoms and encourage those wth the dsease to dscuss treatment optons wth ther doctors as well as seek support from famly and frends, whch has been very mportantto hm. “IPF has certanly changed mylfe, butstayng busy wth myfamly busness and spendng tme wth my wfe, twn sons and frends keep me motvated and focused on enjoynglfe,” Mark says. Learn More For more nformaton about IPF and Esbret, vst www.esbret.com and talk to your doctor. You can also call 1-844693-7274 and press 3 to schedule an educatonalsesson. About Esbret Esbret s a prescrpton medcne used to treat people wth a lung dseasecalled dopathc pulmonaryfbross (IPF). It s not knownf Esbret s safe and effectve n chldren. Important Safety Informaton Before takng Esbret, patents should tell ther doctor about all of ther medcal condtons, ncludngf they: + havelver problems have kdney problems are a smoker are pregnantor plan to become pregnant.It s not knownf Esbret wll harm the unborn baby. are breastfeedngor plan to breastfeed.It s not knownf Esbret passes nto breast mlk. Patents and ther doctor should decde f they wll take Esbret or breastfeed. Patents should tell ther doctor aboutall the medcnes they take, ncludng prescrpton and over-the-counter medcnes, vtamns, and herbal supplements. Patents should avod: Sunlght. Esbret can make skn senstve to the sun andthe lght from sunlamps and tannng beds. Patents could get a severe sunburn. Patents must use sunscreen (SPF 50) and wear hat and clothes that cover the skn f they have to be n sunlght. Patents shouldtalk to ther doctorf they get a sunburnor rash. Takng Esbret wth other medcnes that can make yourskn senstve to the sun, the lght from sunlamps and tannng beds. Smokng. Smokng mayaffect how well Esbret works. Esbret may causeseroussdeeffects, ncludng: lver problems. Patents mustcall ther doctor rght away f they have unexplaned symptomssuch as yellowng of ther skn or the whte part of ther eyes (jaundce), dark or brown (tea-colored) urne, pan n the upperrght sde of ther stomach area (abdomen), bleedng or brusng more easly than normal, orfeelng tred. A patent’s doctor wll do blood tests to check how hs/herlver s workng durng treatment wth Esbret. + senstvty to sunlght (photosenstvty) and rash. stomach problems. Esbret may cause stomach problems such as nausea, vomtng, darrhea, ndgeston, heartburn, and stomach pan. Patents musttell ther doctor rght away f ther stomach problems get worse or do not go away. A patent's doctor may need to change hs/herdose ofEsbret. ‘The most commonsdeeffects of Esbret ncludefeelng tred, nsomna, upperrespratory tract nfectons, snusts, headache, dzzness, and decreased orloss of appette. ‘These are notall the possble sde effects of Esbret. Call your doctor for medcal advce aboutsdeeffects. You mayreportsde effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch. You mayalso report sde effects to Genentech at 1-888-835-2555, Please vst www.esbret.com for the full Prescrbng Informaton, ncludng Patent Informaton, for addtonal mportant safety nformaton.
